Noonan Syndrome (NS)
Support Group Introductions
Hello all! My name is Cindy Falcon. I am 37 years old and the mother of 4 beautiful children. My second child, Jordan, is 11 years old and was diagnosed with Noonan Syndrome when he was 3 months old by a geneticist at Arkansas Children’s Hospital. He has a mild pulmonary stenosis, low set ears, wide spaced eyes and nipples, a protruding breast bone and has a below average IQ. As a baby he was fed by a tube down his throat until we got him a GT at 4 months old. He was on that until about 3 ½ years old. He received PT, OT and Speech for years and is off of everything except OT for his handwriting and upper body strength. He currently takes growth hormone shots 6 nights a week. He is small, weighing about 58 pounds and is 50" tall. But ... to me he’s just Jordan! I am very glad to have found this support group and wish there was anything like it 11 years ago! Thanks, Wanda, for starting it!
Cindy Falcon ... mom to Heather 15, Jordan 11 NS, Taylor 9 and Austin 3
Fort Smith, Arkansas, USA
Email me at: CyndiAnne@aol.com
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