Noonan Syndrome (NS)
Support Group Introductions

Gordon, Holly (as of 4/98)

Hi!

My daughter, Gabriela, born March 5 1991, was diagnosed with NS at about 3months old. She was normal size at birth, and though I had a hard pregnancy and a difficult labor, no one suspected any problems. She had "failure to thrive" and didn't regain her birth weight until she was almost a year old. However, though she was tiny, she walked and talked right on time, and is still very smart. At 18 months old, she had heart surgery for the repair of an Atrial Septal Defect, and a pulmonary valvectomy. She bounced right back after surgery, and now, at 7 years old, we only have to check in the cardiologist every 3 years!

Gabriela is, at 7 years old, about the size of a 3 or four year old, and very slim. She is in normal public school kindergarten, and is reading. She is only a year behind in school because I felt it would be better for her to be older than the other children since she is so small--but she could certainly handle first grade work..

So we have been very lucky, really. We would love to meet other NS kids in the Austin/San Antonio, Texas area.

Holly Gordon
Mom to Gabriela

The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.