Some of these links discuss features that are associated with Noonan Syndrome. This does not mean that all features are seen in all persons with the disorder. Some with Noonan Syndrome may have only a few of these features and some may have many. There are also differences in terms of the severity of each of these features. Some of the information herein may only be covering the "tip of the iceberg" - those cases with features severe enough to require medical attention.
TNSSG:
Bienvenue dans la communaut Noonan France!
(Ermanno's site)
Florida State
Representative (Pamela's site)
Founder for
TNSSG (Wanda's site)
Martha Kate Downey site
Planet Hope - Clickable map of
TNSSG
Rinke's Page
TNSSG Prayer List
Virginia State Representative (Sue'e site)
NS General Information:
Aspects of Noonan Syndrome by Dr. Graham
Glossary of Medical
Terms & Phrases Relating to Noonan Syndrome
Language Disorders in Noonan Syndrome
Noonan Syndrome Factsheet by Dr. Allanson
PEDBASE article
Possible Anomolies
Information on Possible NS Features:
Bacterial Endocarditis
Short Stature
Other NS Support Groups:
German Support Group - Noonan Child
NVGG is the Dutch
support group for people with Growth Hormone Deficiency, Turner Syndrome and Noonan
Syndrome
Inspirational Ideas:
A Parent's Journey
Butterfly
Insurance Issues:
Insurance Stratgies
Foundations/Humanitarian:
Gift of Life
Other Organizations:
Asperger's Syndrome Information
British Society For Paediatric Endocrinology and Diabetes
Children and Adults with Attention Deficit Syndrome
Friends' Health Connection
Gastroesophageal Reflux Association
Human Growth Foundation
Learning Disabilities Association
Magic Foundation
NORD - National Organization for Rare Disorders
Pediatric Endocrinology Nursing Society
Wide Smiles: Cleft Lip and Palate Resource
World Association of Persons with Disabilities
Other Resources:
Assistive Technology
Bridging the Parent-Professional Gap Site and Survey
Child & Adolescent Psychiatry
Cardiac Kids
Congenital Heart Disease Information and Resources
Congenital Heart Disease Resource Page
Disabilities Information Resources
disability Information and Resources
Ear Infections
Family Village
Friends' Health Connection
Gastronomy Support
GlobalNetCare
Hematology Resources
Idealist
Mental Health Infosource
MGH Neurological Support
Non-verbal Learning Disorder
Our Kids Web Site
Parenting Resources
Patient Advocacy Numbers
Points of Pediatric Interests]
Project Choices Inclusion Resources
Psychiatry On-line
Self-Help Sourcebook OnLine]
Sign Language
Special Hearts Online
Special Needs Education Network
Special Needs in England from BBC
The Purine Research Society (Autism)
The Resource Room
The Special Ed Advocate
Tomatis® Method (listening therapy)
Von Willebrand's Disease info
WebABLE! - "First-Stop-Shop" for People with Disabilities
Medical Encyclopedias & Databases:
AMA Health Insight
emedicine
AMI Encyclopedia
HealthGate
Health Net
MedicineNet
Internet Mental Health
InteliHealth from John Hopkins]
List and Glossary of medical terms] [Med Help International]
Medscape (includes Medline)
Mental Health Net]
Pediatric Database (PEDBASE)
The Health Explorer
Medications:
Internet Mental Health
MedicineNet
Medscape Rx Database
Pharmaceutical Information Network]
Pschopharmacology Tips
Laws:
ADA
Research:
Genome Database
Medline Query
PubMed
Language Based Learning Disability:Remediation Research
Educational Issues:
College Planning for
Students with Learning Disabilities
EDLAW
Effective
Practices for Preparing Young Children with Disabilities for School
Including Students with Disabilities in
General Education Classrooms
Integrating Students with Severe
Disabilities
LD in Depth:IEP
Preparing Children with Disabilities for School]
Special Educational Rights and Wrongs
US Government Agencies:
Center for Disease Control
Combined Health Information Database
Department of Health and Human Services
Department of Justice
Federal Drug Administration
[Healthfinder]
National Library of Medicine (includes free Medline use)
Social Security Online
State Title V CSHCN Programs
Around the World:
Special
Needs Information (UK)
Commercial Sites:
Different Roads to Learning
Exceptional Parent
Inclusion Press
Scandipharm products and services
University Sites:
Department of Special Education at The University of Kansas
Harvard Medical - the Whole Brain Atlas
UC Berkeley's School Psychology Program]
University of Bufffalo Cornucopia of Disability Information]
Developmental Care Facilities:
Alphabet House
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Contact Us: Submissions for new links or documents are appreciated. To contact us, click here.
This page and linked sites is to be used for informational purposes only. Any of the information herein may not be complete or accurate and should NOT be used as a substitute for seeking professional medical diagnosis, treatment and care.
The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.