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Noonan Syndrome List ServiceMain List Service
We operate a list service (discussion forum). If you would like to subscribe, and be a part of our family, send an e-mail to firstname.lastname@example.org with only the following command in the message body:
(AOL subscribers also need to type a period "." in the subject line).
If you have technical difficulties joining, we can help. For further information, contact us.
An e-mail group is available to facilitate the exchange of information among kids with Noonan Syndrome. We are utilizing a free service hosted by eGroups.com. They have strict policies regarding privacy and do not tolerate unsolicited e-mail ("spam"). Also, this is a moderated list and all requests must be approved to provide a more safe and private environment. To request to be included, please send an email to email@example.com.For Adults
An e-mail group is available to facilitate the exchange of information among adults with Noonan Syndrome. We are utilizing a free service hosted by eGroups.com. They have strict policies regarding privacy and do not tolerate unsolicited e-mail ("spam"). You may subscribe or unsubscribe at any time. To subscribe, please complete the following information.
A chat room has been set up to facilitate communications. The room should be available at all times. It can be used for moderated discussions or free form chat. If you are interested in scheduling the room (for a specific topic or just a general discussion), firstname.lastname@example.org. Currently, we are having the following scheduled chat sessions:
If you would like to volunteer to be a chat room coordinator please let us know: email@example.com
NOTE: This Chat Room is to be used for members and friends of the Noonan Syndrome Support Group. Inappropriate comments are not allowed. We reserve the right to ban anyone from this room at any time - and for any reason. At the same time, we are not responsible for any of the discussions held in this room.
Tea Party List
In response to the request of some of our members, we have added an additional email list service. This optional list is for "tea party" type discussions.Note: The main email list service continues to be the primary email communication mechanism for TNSSG. When in doubt, send your message to the main list. The resulting discussion can always be moved to the tea party list later.
The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.