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Noonan Syndrome List Service

Main List Service

We operate a list service (discussion forum). If you would like to subscribe, and be a part of our family, send an e-mail to listserv@home.ease.lsoft.com with only the following command in the message body:

    subscribe noonan-syndrome

(AOL subscribers also need to type a period "." in the subject line).

Click here to view the rules and guidelines associated with this list service. Click here for more information on how to use this list service.

If you have technical difficulties joining, we can help. For further information, contact us.


For Kids

An e-mail group is available to facilitate the exchange of information among kids with Noonan Syndrome. We are utilizing a free service hosted by eGroups.com. They have strict policies regarding privacy and do not tolerate unsolicited e-mail ("spam"). Also, this is a moderated list and all requests must be approved to provide a more safe and private environment. To request to be included, please send an email to wanda@noonansyndrome.org.

For Adults

An e-mail group is available to facilitate the exchange of information among adults with Noonan Syndrome. We are utilizing a free service hosted by eGroups.com. They have strict policies regarding privacy and do not tolerate unsolicited e-mail ("spam"). You may subscribe or unsubscribe at any time. To subscribe, please complete the following information.

Subscribe to Adults with Noonan Syndrome

Enter your e-mail address:
ns-adults archive
An e-group hosted by eGroups.com
Chat

A chat room has been set up to facilitate communications. The room should be available at all times. It can be used for moderated discussions or free form chat. If you are interested in scheduling the room (for a specific topic or just a general discussion), info@noonansyndrome.org. Currently, we are having the following scheduled chat sessions:

If you would like to volunteer to be a chat room coordinator please let us know: info@noonansyndrome.org

Date Topic Coordinator Eastern UK
Mondays Open volunteer needed
Tuesdays Open volunteer needed
Eastern Daylight Time = GMT - 4
Eastern Standard Time = GMT - 5
UK Daylight (British Summertime) Time = GMT + 1
UK Standard Time = GMT

NOTE: This Chat Room is to be used for members and friends of the Noonan Syndrome Support Group. Inappropriate comments are not allowed. We reserve the right to ban anyone from this room at any time - and for any reason. At the same time, we are not responsible for any of the discussions held in this room.

Sorry, your browser is not Java enabled, you will not be able to chat.

Tea Party List

In response to the request of some of our members, we have added an additional email list service. This optional list is for "tea party" type discussions.Note: The main email list service continues to be the primary email communication mechanism for TNSSG.  When in doubt, send your message to the main list. The resulting discussion can always be moved to the tea party list later.

To join:

  • Enter your email address where indicated below and click on the Join List button.
  • You will be linked to a page that will also ask your name and state/country. Click on the Join List button when complete.
  • An email message will be sent to the email address you indicated. You must reply to this message.
  • After replying, a followup message will then be sent confirming that you are subscribed.
  • After subscribing, tea party type messages are to be sent to noonansyndrome@listbot.com

Notes:

  • You must send messages from the email address you specified. If you like to use multiple addresses and/or aliases, then subscribe for each address.
  • Don't be afraid to give it a try. Each message you will get gives unsubscribe instructions.
  • This is free to TNSSG and subscribers. As a result, there will be a short advertisement from listbot.com.
  • If you need help, ask for assistance at info@noonansyndrome.org.
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The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.