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QTY @ $   DESCRIPTION
$25.00 Growth Hormone in Noonan syndrome by Kees Noordam The studies presented in this thesis were funded by Pharmacia B.V., Woerden. and FBW Kindergeneeskunde Nijmegen. - $25.00 (Book)
$4.00 Noonan Syndrome A Parents Guide- Excellent booklet written in easy to understand language, produced by The Noonan Syndrome Support Group, Inc.(1 Free with each parent package) - Additional books $4.00 (Book)
$4.00 Cómo Comprender El Síndrome De Noonan Guía Para Los Padres- Preparada Para El Grupo De Ayuda Del Síndrome De Noonan (Noonan Sydrome Support Group, Inc.) (1 Free with each parent package) - Additional books $4.00 (Book)
$4.00 The Many Faces of Noonan Syndrome Excellent booklet with photographs of people of various ages affected by Noonan syndrome. Produced by The Noonan Syndrome Support Group, Inc. -$4.00 (Book)
$10.00 Another Noonan Connection- A cookbook of favorite recipes (over 250 pages) from the families and friends of TNSSG, Inc. Produced by The Noonan Syndrome Support Group, Inc. $10.00 (only
$2.00 The Noonan Support Group Pin - This pin is shaped like a heart and within the heart is a box with the group’s logo. The pin is set on a gold background. $2.00 (View)
$20.00 Noonan-syndrome Characteristics Development, and Intervention - by Dr. Stephen von Tetzchner, Center For Rare Disorders, The National Hospital, Norway: This book is a comprehensive guide that covers the many aspects of Noonan syndrome. $20.00
$5.00 CD: Dr. Steve Band: Director, Division of Pediatric Psychology and Neuropsychology, Mount Washington Pediatric Hospital One of the most common questions he has been asked by parents is how they can promote healthy self-esteem in their children with special needs. It is an important question that remains relevant today.
$5.00 CD: Dr. Thomas Baumgardner: Clinical neuropsychologist. He specializes in the assessment and treatment of children and adolescents with behavioral, learning, emotional, and cognitive disabilities. He is part of a multidisciplinary group of psychologists, psychiatrists, social workers, and behavioral pediatricians located at Johns Hopkins at Greenspring Station.
$5.00 CD: Dr. Bruce Gelb: The Arthur J. and Nelly Z. Cohen Professor of Pediatrics Professor of Human Genetics. Director Cardiovascular Genetics Program, Mt. Sinai School of Medicine, New York, NY.
$5.00 CD: Dr. Bryan Hall: Professor Emeritus Department of Pediatrics Division of Genetics and Dysmorphology, University of Kentucky, Lexington, KY. Special diagnostic interests: multiple congenital anomaly syndrome identification and teaching thereof.
$5.00 CD: Dr. Dolores Njoku: Pediatric Anesthesiologists on Staff at Johns Hopkins, Baltimore, MD. Research interests include the Immune effects of anesthetics
$5.00 CD: Dr. Jacqueline Noonan: University of Kentucky Medical Center, Lexington, KY. Professor of Pediatrics in the Division of Pediatric Cardiology.
$5.00 CD: Dr. Alicia Romano: Director of Pediatrics Endocrinology Our Lady of Mercy Medical Center Bronx, NY.
$5.00 CD: Dr. Frank E. Schafer :Associate Professor of Pediatrics, MCP Hahnemann University School of Medicine; Director General Hematology Clinic and Bleeding Disorders Program, St. Christopher's Hospital for Children Philadelphia, PA.
$5.00 CD: Dr Judith Allanson: Clinical geneticist with a longstanding interest in Noonan Syndrome. Her research focuses on the face: how it changes with age; how we evaluate facial appearance; how important knowledge of facial change is in the diagnosis of Noonan Syndrome.
 
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Contact us e-mail info@noonansyndrome.org or call 888-686-2224 or 410-374-5245 (EST)

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TNSSG, Inc.
P O BOX 145
UPPERCO, MD 21155  


The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.