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DESCRIPTION
$25.00
Growth
Hormone in Noonan syndrome by Kees Noordam The studies presented in this
thesis were funded by Pharmacia B.V., Woerden. and FBW Kindergeneeskunde
Nijmegen. - $25.00 (Book)
$4.00
Noonan
Syndrome A Parents Guide- Excellent booklet written in easy to understand
language, produced by The Noonan Syndrome Support Group, Inc.(1 Free with
each parent package) - Additional books $4.00 (Book)
$4.00
Cómo
Comprender El Síndrome De Noonan Guía Para Los Padres- Preparada Para El
Grupo De Ayuda Del Síndrome De Noonan (Noonan Sydrome Support Group, Inc.)
(1 Free with each parent package) - Additional books $4.00 (Book)
$4.00
The
Many Faces of Noonan Syndrome Excellent booklet with photographs of people
of various ages affected by Noonan syndrome. Produced by The Noonan Syndrome
Support Group, Inc. -$4.00 (Book)
$10.00
Another
Noonan Connection- A cookbook of favorite recipes (over 250 pages) from the
families and friends of TNSSG, Inc. Produced by The Noonan Syndrome Support
Group, Inc. $10.00 (only
$2.00
The
Noonan Support Group Pin - This pin is shaped like a heart and within the
heart is a box with the group’s logo. The pin is set on a gold background.
$2.00 (View)
$20.00
Noonan-syndrome
Characteristics Development, and Intervention - by Dr. Stephen von Tetzchner,
Center For Rare Disorders, The National Hospital, Norway: This book is a
comprehensive guide that covers the many aspects of Noonan syndrome. $20.00
$5.00
CD:
Dr. Steve Band: Director, Division of Pediatric Psychology and
Neuropsychology, Mount Washington Pediatric Hospital One of the most common
questions he has been asked by parents is how they can promote healthy
self-esteem in their children with special needs. It is an important
question that remains relevant today.
$5.00
CD:
Dr. Thomas Baumgardner: Clinical neuropsychologist. He
specializes in the assessment and treatment of children and adolescents with
behavioral, learning, emotional, and cognitive disabilities. He is part of a
multidisciplinary group of psychologists, psychiatrists, social workers, and
behavioral pediatricians located at Johns Hopkins at Greenspring Station.
$5.00
CD:Dr. Bruce Gelb: The Arthur J. and Nelly Z. Cohen Professor of
Pediatrics Professor of Human Genetics. Director Cardiovascular Genetics
Program, Mt. Sinai School of Medicine, New York, NY.
$5.00
CD:
Dr. Bryan Hall: Professor Emeritus Department of Pediatrics
Division of Genetics and Dysmorphology, University of Kentucky, Lexington,
KY. Special diagnostic interests: multiple congenital anomaly syndrome
identification and teaching thereof.
$5.00
CD:
Dr. Dolores Njoku: Pediatric Anesthesiologists on Staff at Johns
Hopkins, Baltimore, MD. Research interests include the Immune effects of
anesthetics
$5.00
CD:
Dr. Jacqueline Noonan: University of Kentucky Medical Center,
Lexington, KY. Professor of Pediatrics in the Division of Pediatric
Cardiology.
$5.00
CD:
Dr. Alicia Romano: Director of Pediatrics Endocrinology Our
Lady of Mercy Medical Center Bronx, NY.
$5.00
CD:
Dr. Frank E. Schafer :Associate Professor of Pediatrics, MCP
Hahnemann University School of Medicine; Director General Hematology Clinic
and Bleeding Disorders Program, St. Christopher's Hospital for Children
Philadelphia, PA.
$5.00
CD:
Dr Judith Allanson: Clinical geneticist with a longstanding
interest in Noonan Syndrome. Her research focuses on the face: how it
changes with age; how we evaluate facial appearance; how important knowledge
of facial change is in the diagnosis of Noonan Syndrome.
PLEASE PRINT THIS FORM. MAIL COMPLETED ORDER FORM AND PAYMENT TO:
TNSSG, Inc.
P O BOX 145
UPPERCO, MD 21155
The Noonan Syndrome Support Group, Inc. and any associated parties
will not be held responsible for any actions readers take based on their interpretation of
published or disseminated material. Please review medical treatment and decisions with
your physician.